cancer hero

Lipson Cancer Institute

Service

Cancer Community Support Resources

Gilda's Club

255 Alexander Street
Rochester, NY 14607
Phone:  585.423.9700
gildasclubrochester.org

A free cancer support community that offers

  • Weekly - wellness and family groups
  • Monthly – networking groups for specific cancer types.
  • Workshops – such as journaling, yoga, stress management.
  • Lectures by specialists
  • Social events

Call for more information about weekly New Member Meetings

Camp Connect – Camp for adults with cancer.

Camp Open Arms – Summer day camp for children with cancer and their siblings.

American Cancer Society

1120 Goodman Street South
Rochester, NY 14620
Phone: 585.288.1950
cancer.org

  • Reach to Recovery – one to one support for women who have had breast cancer surgery; provides information on prostheses.
  • Man to Man –   group support and information for men with prostate cancer.
  • Look Good … Feel Better – professional cosmetologists help people with cancer use make-up and wigs to enhance their appearance.
  • Financial Assistance – some funds are available to reimburse patients for transportation and pain medication.
  • Hope Lodge – housing is provided for out of county residents while receiving cancer treatment in Monroe County hospitals.
  • Cancer Support Network – connects cancer survivors in-person, over the phone and on the internet.
  • Public Education – provides speakers, films, literature, and brochures on cancer.
  • Prevention – information on healthy diet, smoking cessation, holds Pap test and breast self-exam clinics.

National Cancer Institute

Phone: 800.4.CANCER
nci.nih.gov

Cancer Information Service – personalized information by telephone, request line for written materials.

Leukemia and Lymphoma Society of Western New York

4053 Maple St suite 110
Amherst, NY 14226
1-800-784-2368
Phone: 716.834.2578
leukemia-lymphoma.org

Eligibility – serves people with Leukemia, Lymphoma, Hodgkin’s disease, Multiple Myeloma, aplastic anemia, and myelodysplastic syndrome.

Patient Aid Program – grants of $500.00 per year per patient are available to assist with costs of specific treatments, specific medications, transportation, x-rays, HLA typing of bone marrow donors.  A list of drugs eligible for reimbursement is available on request.

Support Group (Rochester Area) - for people with multiple myeloma and amyloidosis.

Public Education – regarding leukemia and related blood disorders.  Brochures and speakers are available.

Corporate Angels Network

Westchester County Airport
Building 1
Plains, NY
Phone: 914.328.1313
corpangelnetwork.org

White Service – free transportation for cancer patients going to or from recognized treatment facilities.

National Coalition for Cancer Surviorship

1010 Wayne Ave. Fifth Floor
Silver Spring, MD 20910
Phone: 301.650.9127
cansearch.org

Mission – believing that everyone with a cancer diagnosis is a cancer survivor, this organization strives to assist survivors with the social, psychological, legal, financial and political impact of cancer.

Activities – quarterly newsletter, national conference, resource and information, lobbying, individual advocacy as needed.

Camp Good Days and Special Times

Offers programs for children with cancer/ sickle cell anemia, children who have a parent/ sibling with cancer, children who've lost a parent/ sibling, and adults with cancer.

1332 Pittsford-Mendon Rd
Phone: 585.624.5555
campgooddays.org

Support programs for school age children and parents:

  • Parent bereavement program
  • Parent illness program
  • Young adult bereavement
  • School bereavement

The services and programs listed above are offered to our patients and their families as a resource. This list is not meant to be all inclusive, does not constitute a recommendation by Rochester Regional Health, nor an assurance as to the quality of services provided. Please reach out to your on-site social worker for more information.
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