CompassionNet is a community-based pediatric and perinatal palliative care program that provides support and care to families caring for a child with a potentially life-threatening illness or families expecting the birth of a child with a serious medical condition. Starting at the time of diagnosis, our interdisciplinary team collaborates with other providers to address children and families’ physical, emotional, social, and spiritual needs and improve quality of life.
The team at CompassionNet includes social workers, nurse practitioners, child life specialists, physicians, nurses, and volunteers. Every CompassionNet family has a supportive care social worker or specialist who provides emotional and practical support and helps connect families with financial, therapeutic, and community resources. Our medical team specializes in pediatric and perinatal palliative care coordination and consultation, as well as pain and symptom management. Child life specialists help the children in our program and their siblings understand and cope with diagnoses, treatment, and emotions.
While our program requires a referral from your child’s pediatrician or specialist, services are free for families. There is no cost for you to participate in CompassionNet.
Some children are discharged from CompassionNet when their condition improves, while others remain on the program as they continue to receive treatment. If a child’s condition worsens, we provide compassionate end-of-life and bereavement care to the family. Throughout the ups and downs of a child’s illness, we will be there, celebrating with families when they receive good news and offering support and guidance when it is needed the most.
For more information about CompassionNet, please call 1-800-308-3914 or email Rochester Regional Health Hospice
Our program is designed for families of children/youth under the age of 21 who are diagnosed with a medical condition that meets at least one of the criteria outlined below and are also enrolled in an insurance plan managed by a participating health insurance provider (such as Excellus Health Plan, Inc. or Univera Healthcare) or support through an alternate payer contracted with CompassionNet:
For more information, please call 1-800-308-3914 or email [email protected].
You can help support children and families in our community by making a gift today.
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These photos were taken at CompassionNet's SibsROCK! day. We recognize that it's hard to have a brother or sister that has undergone medical treatment. SibsROCK! is a day when siblings can have fun with other kids who "get it."
Hear direct from families who have positively been impact by the support and care our CompassionNet program has offered them.
