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Home Care

CompassionNet

CompassionNet is a community-based pediatric and perinatal palliative care program that provides support and care to families caring for a child with a potentially life-threatening illness or families expecting the birth of a child with a serious medical condition. Starting at the time of diagnosis, our interdisciplinary team collaborates with other providers to address children and families’ physical, emotional, social, and spiritual needs and improve quality of life.

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About CompassionNet

compassionNetThe team at CompassionNet includes social workers, nurse practitioners, child life specialists, physicians, nurses, and volunteers. Every CompassionNet family has a supportive care social worker or specialist who provides emotional and practical support and helps connect families with financial, therapeutic, and community resources. Our medical team specializes in pediatric and perinatal palliative care coordination and consultation, as well as pain and symptom management. Child life specialists help the children in our program and their siblings understand and cope with diagnoses, treatment, and emotions.

Meet Our CompassionNet Team

While our program requires a referral from your child’s pediatrician or specialist, services are free for families. There is no cost for you to participate in CompassionNet.

Some children are discharged from CompassionNet when their condition improves, while others remain on the program as they continue to receive treatment. If  a child’s condition worsens, we provide compassionate end-of-life and bereavement care to the family. Throughout the ups and downs of a child’s illness, we will be there, celebrating with families when they receive good news and offering support and guidance when it is needed the most.

For more information about CompassionNet, please call 1-800-308-3914 or email Rochester Regional Health Hospice

Eligibility Criteria

Our program is designed for children under the age of 21 who have an Excellus, Univera, or Molina-managed health insurance plans. For a child to be considered eligible for CompassionNet, they must meet at least one of the following criteria:

  • A medical condition for which curative treatment is possible, but may fail
  • A medical condition which is progressive and treatment is comfort oriented only
  • A potential life-limiting condition whereby the child is experiencing a progression or exacerbation of the disease which may be evidenced by increased frequency or duration of acute care intervention; and/or requiring intensive pain and symptom management
  • A condition involving severe, non-progressive disability during a time of extreme medical fragility placing the child at risk to die

For more information, please call 1-800-308-3914 or email [email protected].

CompassionNet's Families

Young body at CompassionNet's SibsROCK! day
two boy at CompassionNet's SibsROCK! day
two boys doing an art activity at CompassionNet's SibsROCK! day
two children at CompassionNet's SibsROCK! day
two children at CompassionNet's SibsROCK! day
two boys drawing at CompassionNet's SibsROCK! day
children coloring at CompassionNet's SibsROCK! day
two girls at CompassionNet's SibsROCK! day
a girl at CompassionNet's SibsROCK! day molding clay
young boy painting a rock at CompassionNet's SibsROCK! day
young girl painting a rock at CompassionNet's SibsROCK! day
two young boy walking at CompassionNet's SibsROCK! day
young boy playing in a playground at CompassionNet's SibsROCK!
two boys at CompassionNet's SibsROCK! day
girl at playground at CompassionNet's SibsROCK! day
two girls at CompassionNet's SibsROCK! day
three children at CompassionNet's SibsROCK! day

These photos were taken at CompassionNet's SibsROCK! day. We recognize that it's hard to have a brother or sister that has undergone medical treatment. SibsROCK! is a day when siblings can have fun with other kids who "get it."

Family Stories

Hear direct from families who have positively been impact by the support and care our CompassionNet program has offered them.

Hear From Our Families

Frequently Asked Questions

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Get Started

Your family might benefit from CompassionNet's services if you are caring for a child with a potentially life-threatening illness as well as families expecting the birth of a child with a serious medical condition.
Contact Rochester Regional Health Home Care